Eosinophilia Info Revisited

I started reading some of the old articles I have bookmarked on eosinophilia last night and I think there’s one question docs can answer for me that may give me greater peace of mind.  My biggest fear with this has been evolution into either hypereosinophilia (HES) or chronic eosinophilic leukemia (CEL).  I’ve pretty much ruled out the possibility of the latter with learning the blood cells have clonal properties and surely they would have found that by now if mine did.  Also, it almost specifically effects men.

I did a blog search in hope of maybe talking to someone with CEL to find out what onset was like, specifically if it began with mild eosinophilia, and found only one blogger who has been diagnosed with it.  And according to him, he’s like one of 25 people in America who has it.  I added it to my blog list so I can follow his progress… hope you don’t mind, Ivan. 

I also found another doctor who is considered and authority on eosinophils and notes from one of his lectures has given me a few other areas to explore.  I’ve always thought my stomach issues were secondary to whatever is going on with me, but it may actually be the heart of the problem.  Too many eosinophils in the gastrointestinal tract can cause a lot of the stomach issues as well as inflammation in other parts of the body due to increased eosinophils circulating the blood stream.  It seems this is confirmed by biopsy, but after a bone marrow biopsy and spinal tap, I’m not skeered!  Especially not if it means finally getting some answers and some treatment.

I’ve sent an email to a hemapathologist in another part of the state and requested information on a doctor who could treat eosinophilia so we will see if I get a response with that.  I also plan to write my PCP and ask about maybe seeing a gastrointerologist who could at least do the test for me. 

And now the house is alive with excitement so I’m out!